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Jan
28th
Wed
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I’m a “metal head”

YEAH!!!! Went in for surgery today and although the Doc was going to try to put a metal stint in my ureter he told me that he doubted that my body would allow it but HE DID IT!!!! Yes, I am the proud owner of a new metal stint which means that I will only have to have it replaced once a year rather than every 3 mos. the procedure itself was done in the operating room rather than the “torture chamber. ” I was OUT rather than feeling everything. The worst part was the IV because again, they don’t like to use my port. they stuck my hand several times. It will be blue, but it’s over. So, I don’t have to go back to my oncologist until April and I have a scan in March. Things are looking up. Again, I couldn’t do it without the support and love of my wonderful friends and family. I AM BLESSED!!!!! Love, Metal Mouth and other things…

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Jan
26th
Mon
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Hi all!  This is Niki posting for Mom.  Because of the generocity of her friends, mom was the top fundraiser for the Liferaft Group again this year!!  They asked her to contribute something personal for their newsletter and here is what she had to say:

“Here’s how I feel about a cure. As I lie in my bed each night I thank God for keeping me here for that day and ask him to bless and protect me for the next. In my 18 years of fighting this battle with GIST I say that prayer each night. The coolest thing would be to know that my prayer was answered and that I have been and will continue to be protected from this dreaded disease, with a cure.” 

Look for her in this month’s newsletter at www.liferaftgroup.org

Hi all! This is Niki posting for Mom. Because of the generocity of her friends, mom was the top fundraiser for the Liferaft Group again this year!! They asked her to contribute something personal for their newsletter and here is what she had to say: “Here’s how I feel about a cure. As I lie in my bed each night I thank God for keeping me here for that day and ask him to bless and protect me for the next. In my 18 years of fighting this battle with GIST I say that prayer each night. The coolest thing would be to know that my prayer was answered and that I have been and will continue to be protected from this dreaded disease, with a cure.” Look for her in this month’s newsletter at www.liferaftgroup.org

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Jan
15th
Thu
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The luck of the Irish!

Gee what a surprise, the one disease I want to have, I don’t. My thyroid tests were in the normal range so looks like Weight Watchers and I will become good friends again next week. Don’t you just hate it! Although, I am soooo… happy with my scan results that I shouldn’t be complaining. I am truly blessed!

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Jan
12th
Mon
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Got the Doc’s stamp of approval

Saw Dr. Kauh (my oncologist) today. He is very happy with the results of my scan and my bloodwork. I don’t have to go back to see him for three months. At that time, I’ll have another scan. He said that we’ll do every 3 mos. for a year and then go to 6mos. He did send me for bloodwork with a suspicion of thyroid problems. I told him that that is every fat girls dream. He just laughs at me. I have been cold all the time and my hair is falling out so he said let’s look at your thyroid. Me and Oprah!!! With my luck, it will be fine and it’s just my metabolism. wouldn’t it be great if a little pill would help me to lose weight? Keep ypur fingers crossed. Pat

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Jan
7th
Wed
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YEAH!!!!!!

Looks like 2009 is starting out in a good way. Got my scan results. Looks like what they see in my pelvis is unchanged in fact they don’t even list measurements for it which they did when they first saw it. It is still showing some activity but very little. It is unchanged from my Oct scan. So, maybe that awful RFA, after all the problems it caused, really did work. I was so convinced that it was going to be awful news that I was in shock when my Doc emailed me the results. Dr. Kauh is the best! Also Cliff Beeks, my friend with lymphoma, started a new kind of chemo yesterday. Maybe he’ll get good news too. Lots of friends of mine are in need of lots of prayers these days. Please keep me and them in yours. Thanks, Love, Pat 

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Jan
6th
Tue
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Scan Day

Hi! Yesterday was a long and tedious day. I left the house at 10:30 and got home at 5. Spending the entire day at Emory getting blood drawn and getting a PET/CT scan done. That’s not the bad part the bad part is waiting for the results. As you know after the RFA which was supposed to get rid of the tumor, the scan said stable to slightly improved so the BIG C is still there but I hope continuing to shrink. I have an appt. to see my oncologist next Mon but hope that if I email him that he will let me know the results earlier via email. Keep the prayers going up for me. We are heading to the mountains with friends  for the weekend. There are 12 of us going. Let’s hope that we’re celebrating not only Bob and Bulger’s B-Day’s but also my good news!! Love, Pat

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Dec
31st
Wed
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Happy New Year

Are you as glad to see 2008 go as I am? I’m looking forward to 2009. The only good thing that sticks out in my mind in 2008 was my son’s wedding. Other than that it seems to have been a storm of medical messes for me and my close friends. At least with a New Year you also have a renewed optimism. So, although my resolutions always revolve around changing my body, this year I plan to show appreciation by word and deed to those who are important in my life. We often get caught up in the negative aspects in our lives and forget to recognize the great gifts we have which in my case are many i.e. I have the best husband, son and daughter-in-law and daughter that anyone could have and friends that many people envy. So if I fail to mention how important the  people in my life are to me in 2009 remind me. Love and Happy New Year to all of you. Pat

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Dec
9th
Tue
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Things are looking up

Hi! Got good news from my bloodwork yesterday. My hemoglobin went up from 8.8 to 9.6 in one week. It’s still pretty low but is going in the right direction. Being a carnivore rocks! Speaking of rocks, my lucky daughter is going to Vegas on Fri. I’m so jealous! she and Trent and her other NIN buddies  will be rocking out on Sat. night. Got the wedding pics back yesterday. Really like them Can’t wait to get some made into pics for all of you to see and maybe even get for Christmas presents. Hope all is well with you and that your checkbooks are not getting too depleted during this shopping season. Love, PAt

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Dec
2nd
Tue
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The Results

Got an email from my Doc. He says that my bloodwork looks pretty good except for my hemoglobin which is at 8.8 and 12-16 is normal. But I guess that losing all of that blood has to have consequences. I feel pretty good except for fatique and being out of breath which come from my blood being low. So, I do have some blood left there’s just not a lot of it. Time to eat red meat!!! Pat

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Dec
1st
Mon
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I’m out of blood!

Thought that y’all might like to know that I must be out of blood because I stopped bleeding on Sat. Ten long days… I felt like a girl again, being visited by a very heavy “FRIEND”. Went for bloodwork today but haven’t heard anything so no news is good news. Let’s hope that I don’t have to go to Emory again till Jan when I’m scheduled for my PET scan. Hope that all of you had a great Thanksgiving. We all have a lot to be thankful for this year. We have a new addition to our family with Toni becoming a Lemeshka and I am the luckiest with such a slew of loyal and wonderful friends. I’ll try to keep you updated. This BLOG thing is pretty cool! Love ya, Pat

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